What exactly is Down Syndrome (DS), well, it is a genetic condition where individuals have 3 copies of chromosome 21 instead of 2. In the United States, it is estimated to be 1 in every 700 live births.
People with DS may have some challenges, but they also have some great abilities! An individual may have problems balancing or speaking. But there have been great strides in making sure any individual with DS gets the help they need to succeed in society.
The National Down Syndrome Society (NDSS) is one such organization that is making it possible. By promoting putting children of school age in an inclusive environment, they could grow up to do things like any other child: Drive a car, go to college and have a job. NDSS has been one of the leaders in promoting community awareness and organizations in the community such as schools, health care, social and recreational.
NDSS is a very important and close part of my life. 13 years ago God blessed me (Linda Ostoin, one of the Early Childhood teachers) and my husband with a little girl who just so happens to have down syndrome. I knew God chose me for a reason, not sure what it is at the moment, but I know that I wouldn’t change this for anything!!! It has been challenging at times but I have persevered through it. She is not one to back down from anything. She loves playing hockey, being in the band, singing and has been in many musicals !! Some may be difficult but she never gives up.
I have been running for NDSS as their athlete ambassador. I have participated in many races and raised money for NDSS. This January I will be running my biggest race to date. The Disney Marathon! I have run the Disney Princess-half marathon for about 6yrs. It was time to move on to the big one. If you would like to support this cause, you can do so at https://give.ndss.org/fundraiser/3853441 Wish me luck!
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